Today has been along day...............We arrived late to the appointment, it's an ongoing joke that I always show up late. we ran to get his x ray, done since that is always done before his check up, Once that was done we ran in they informed us that they were also running late and that there were about 20 patients waiting before us??? Go figure.
After waiting an hour it was time for his sedated echo so........I asked if we needed to go ahead with that since the doctors were so late and we didn't want to miss that appointment too. They started the run through for the echo, blood pressure, weight, pulse ox, and listen to his lungs and thats when the red flag went up.......................................... the nurse heard weezing and that was it the echo was off.!!!!!
Since connor does not do well with the drugs for the sedation and that he now looked to still have a cold or congestion in his chest. The nurse thought it was too high of risk to sedate him. I asked if we could go ahead and try anyway, if I could feed and get him to sleep could they get the echo done that way............................... the nurse said okay lets try!!! Thank heavens I didn't want to have to do this all again being that he couldn't eat all morning.......
Connor is such a good baby he took his bottle and fell fast asleep for the entire echo....he is amazing )
After the echo it was back to the waiting room .....while we were waiting they did the 02 test to see if he could come off of it.......... and he dropped from 88 to 77 pretty fast but they still did not say if he could go home without it?????
We waited a while longer and the doctor arrived ........He said that his heart function looked perfect and that he could stop the heart meds and that he could be off the oxygen during the day just at night when he goes to bed he'll need to be back on it. He can also take a bath so ...................................bye bye spit bath and Connor's weight get this is.................................16 lbs 25 1/2 inches long!!!! He is such a big boy
So it's back on the normal formula for this big boy
After all was said and done it was time to go home.................................... thank heavens jossy was ready to go play and I needed a nap :)
All I can say is thank you all for your prayers and love and keep it coming.............. Connors next check up is in 2 months............................ I pray and I hope for 5 more years untill the next big surgery :)
14 just hits different
2 months ago
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