Love of my Life

Love of my Life

Heart Mother

One day my world came crashing down,I'll never be the same.They told me that my child was sick.I thought, "am I to blame"?I don't think I can handle this.I am really not that strong.It seemed my heart was breaking.I have loved him for so long.I will not give up on this child.I will listen to your advice.I will give my child any chance.No matter what the price.I will learn all that I need to help my child thrive.I'll even use that feeding tube.My child must survive!Will he need a lot of therapy?Will he gain the needed weight?Please God, help me do this.I will accept our fate.When the monitors beep at night, it serves as my reminder.How many parents would love that sound.Tomorrow I will be kinder.As another Angel earns his wings,I run to my child's bed.I watch him sleep for quite a while.I bend down and kiss his head.I cry for the parents whose hearts have been broken.I look to You wondering why?Oh Lord, I just can't know your ways....no matter how I try.And yet, I trust you hold his life, and guide us through each day.My mind says savor each moment he's here,but my heart begs, "PLEASE let him stay"!From pacing the surgical waiting room, to sitting by his bed.From wishing for a good nights sleep, to learning every med.From wondering, "will he be alright?", to watching him reach out his hands.With every smile my heart just melts, despite life's harsh demands.For all who see that faded line.I look to them and smile.You see my child is loved so much.I would face ANY trial.That scar I trace with my finger (It's the door to his beautiful heart).God must have known how much I'd love him (Just as He loved him from the start).A heart mom is always a heart mom.Now wise beyond her years.For those who have angels in heaven,Our hearts share in all of your tears.Every day I will try and remember,I was chosen for him (and no other).I will always embrace that beautiful day.......When I became a "Heart Mother"

Sunday, November 7, 2010

Flu season again :(

A FRIENDLY REQUEST

So here is our friendly request to our dear friends, neighbors and family. PLEASE, lets us know if you or your kiddos have been sick and will be having contact with Connor. That way we can make a decision on whether we need to change our plans and stay home.

If you have spent time with him recently and end up getting sick, let us know as well. We understand that you may feel well one day and sick the next. This is in no way to make someone feel bad, but it helps give us an idea of what it could be if he does end up sick. For a regular kiddo, no biggie. But for Connor this will save him multiple blood draws (and tears) as they run labs to figure out what type of illness he has. So think of it as doing Connor a favor and Please just give us a heads up.

Also, if you happened to get the FLU MIST and will be in contact with Connor please let us know so we can stay away for a couple weeks. We have received a letter from cardiology stating that because the Flu Mist is a LIVE vaccine it could be contagious to Connor. Therefore, we are to stay away from those that have received the mist and ask those that will be in contact with him to get the SHOT instead.

Thanks for always being so so good about all of this. We hate asking this of others but we know of the major impact this could have on Connor's health and in all honesty his life.

1 comment:

Heidi said...

I had no idea about the flu mist. Both my other kids got that with Logan there with them. Who is your cardiologist?