Moments+ LIFE= CHD AWARENESS

 my moments

My heart moments

The birth of my baby boy

the first time he stole my heart

the day I lost my heart- When they told me to hold my baby boy because they didn't know if he would make it

 the time my heart felt relief -The first time I held him when I was told WE CAN FIX THIS

the first time I felt pain so immense I could not breath- The minutes before they took my baby boy to the operating room I had to let go

 my heart was filled with joy he made it-The first time I saw my baby after his open heart surgery

My life is lived in moments...........it has been the most painful thing your heart can go through

when you tell people about it it almost sounds OK not so bad ..............but have you had your heart handed to you and pulled and tossed and pinned up
Unless you are a heart mom or have lost or been through the loss of control of the most important little person that you love more then life do you really know the pain.

This week is Heart Awareness week

This is the #1 Birth defect..................... why don't they talk about why isn't it tested for???

This is what we are trying to get out there

THIS IS REAL AND NEEDS TO BE SCREAMED FROM THE TALLEST BUILDING!!!!!!

I along with other heart moms live in the moment not know what tomorrow  will bring

 please tell everyone tell them so it isn't the surprise birth defect but the one that is tested and fixed and given hope to all that have the honor of becoming there parents!!!

I wanted to include this post!!! I posted it along time ago but it tells how it really is

I think this explains to some that have not gone through what us heart moms have to give you a look and why sometime I look tired or angry, just don't want to talk and when I just need you to listen so I feel that I'm not losing my mind, soul and heart.

My life has changed for the better but still it's a trial and I'm not a saint.

What does it mean to be the parent of a child with a heart defect? It means going into your baby’s room a dozen times a night just to check to see if he’s still breathing. It means standing over the crib to watch the chest rise and fall and when you don’t see it move, you begin to panic and put your head down close to your baby’s face to try and hear him breathe. It means that when you don’t see the chest move and you don’t hear him breathing (because your own heart’s beating is drowning out any other sound in the room), you put your finger under the baby’s nose to feel the air on your finger – until you wake the baby and it stirs – and you’re thankful, so thankful that he’s still with you. It means feeling a huge sense of relief when he hears you and opens his eyes and smiles. It means saying a prayer of thanks for another day. It means measuring out his medication and panicking if he spits some of it out. How much did he spit out? One cc? Two or three? Then wondering if you should guesstimate how much more he should have and if you’d over medicate him. It means checking his nail beds against your own to determine how blue he is today. It means asking your husband, your mother, or your sister, “Do his lips look blue to you?” It means snuggling him in an extra blanket for fear he won’t be warm enough. It means worrying that even a sniffle could cause an infection that could harm his heart. It means taking your baby to the doctor and worrying that he will catch something in the waiting room, so you walk back and forth in the corridor until the nurse calls his name and takes you straight back to the examination room. It means knowing that everyday is a blessing and a gift. It means knowing that you are the luckiest person in the world, just to be a parent. It means cherishing every moment, every breath with such intensity that you feel tears come to your eyes for no apparent reason. It means praying for a miracle to save your baby’s life. It means praying your marriage is strong enough to endure the hospitalizations, separations, and grief. It means praying for the will to live, even if your baby doesn’t. It means your own heart knows a pain, no parent should know. It means feeling weak, helpless, angry, and depressed because your child’s fate is out of your hands. It means feeling strong, determined, and brave because you know you have to be. It means your love knows new unlimited boundaries. It means your pride in your child’s accomplishments is unparalleled. It means your pain has taught you a deeper sense of compassion than you ever imagined. It means we are all united by the same feelings.

WEAR RED and WEAR IT PROUD