What's NORMAL.....not us

My little man isn't so well he likes to remind me that our lives are just not normal !!!

It started a week ago when I thought he was just a little blue and then he had a few times he would just go pale and stay that way for 15-20 minutes I thought it was he oxygen Sat's and hooked him up while he slept to see where he was in the lower 80s nothing to bad little lower then normal so I called my favorite nurse at primary and told her what was going on I was to go to Annual Heart Mothers dinner that night and thought nothing of it just prayed that I was wrong and that he was fine !!!! Wasn't meant to be....... shortly before I was to leave for my Heart mothers dinner I got the call " Dr. Williams wants him to wear a holter monitor for 24 hours he's having arrhythmia's and we need to know why?" SO I got undressed and settled in for a long week since the monitor wouldnt ship until Monday I would not leave my little man and haven't since

You blink and their health changes and your life changes too!!!!

I know that on Friday it back to the house on the hill for a once over and I am praying we having a few more months before the surgery but since my little man will not eat anything but his bottle and he looks tired he might have different plans then that he always wants to do it his way ........................and I will follow whatever he wants!!!!

A lot of emotions going and allot of lack sleeping
 I feel just a little lost and worn down but cant not put my finger on it........................................ just the stress of the up coming surgery???
 I guess !!!! on selfish note I was so so looking forward to the Heart moms dinner ,I only do things for myself once in a blue moon so for it to happen the night of was heart breaking and dumb I guess because I would never leave Connor when he was sick!!!

Pray for Connor that they will know when the time is right for his surgery and that God will let my baby stay with me for a long long time that's all I want nothing more !!!!